Resources

The following resources are provided as a service to visitors of our website and are for informational purposes only. Careforward Consulting does not assume any responsibility for the content or information contained on linked sites and does not have any editorial or other control over them.

Resource Link Topics:

Information and Support Resources
Prevention
General Health
Federal Government Agencies
Advocacy and Legislation
Accreditation and Standards
Resources for Persons with Spinal Cord Injury
Resources for Amputees

INFORMATION and SUPPORT RESOURCES

TBI Education Materials for Providers and Consumers

As a public service from the Michigan Department of Community Health, this is a collection of comprehensive information for providers and consumers.

The Michigan Resource Guide (PDF – 500 KB)

The Michigan Resource Guide for Persons with Traumatic Brain Injury and Their Families” offers an introduction to traumatic brain injury as well as information on commonly needed services and financial support. It was prepared by the Center for Data Management and Translational Research at the Michigan Public Health Institute.

Brain Injury Association of America

The BIA’s mission is to provide information and resources to the survivor of brain injury and to educate in ways of prevention. From its home page, you can locate your local chapter and the support groups that serve your area. Excellent links section.

Brain Injury Association of Michigan

Founded by family members, persons with brain injury, and persons in the brain injury field, it was incorporated in Michigan in 1981 and was one of the first state associations chartered by the National Brain Injury Association. The BIA of Michigan has affiliated groups that include the Michigan Brain Injury Providers Council and local support groups throughout Michigan.

National Resource Center on Traumatic Brain Injury

Practical information for professionals, persons with brain injury, and their families. From Virginia Commonwealth University’s Medical College of Virginia.

International Brain Injury Association

The International Brain Injury Association was founded in 1993. The IBIA encourages collaboration and the sharing of information related to all aspects of brain injury, from prevention to long-term care issues. The site offers brain injury facts, news, conference and program information, and more.

Dana Brain Center

General information about the brain and current brain research, and links to validated sites related to more than 23 brain disorders. “Brainy Kids Online” offers children, parents and teachers a site with activities for younger children, puzzles, links to excellent educational resources, and lesson plan suggestions.

While Someone is in a Coma

Offering information about coma, the Rancho Los Amigos Scale, neurosurgery, brain anatomy, brain functions and a complete glossary of terms you may encounter. It answers frequently asked questions, discusses advocacy, financial, legal issues, discharge and rehabilitation.

Housing and Mortgages for People with Disabilities

MortgageLoan.com offers information on the advantages and disadvantages of home ownership, including general information on the homebuying process, financial assistance and more.

True Cost of At-Home Caregiving

An article from National Public Radio which reveals the true cost of at-home care giving.

PREVENTION (Back to top)

Think First Foundation

The mission of the Think First Foundation is to prevent brain, spinal cord and other traumatic injuries through the education of individuals, community leaders and the creators of public policy.

The National Safe Kids Campaign

The mission of the National Safe Kids Campaign is to prevent the number one killer of children – unintentional injury. By working at a national level through grassroots, Safe Kids Worldwide educates adults and children, provides safety devices to families in need, and passes and strengthens laws to empower families and communities to protect children ages 14 and under.

GENERAL HEALTH (Back to top)

MedlinePlus

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.

Neuroscience on the Internet

A searchable and browsable index of neuroscience resources available on the Internet: neurobiology, neurology, neurosurgery, psychiatry, psychology and cognitive science sites as well as information on human neurological diseases.

U.S. Department of Health & Human Services – HealthFinder

A mega site for health information sponsored by the U.S. Department of Health and Human Services. Excellent links section.

FEDERAL GOVERNMENT AGENCIES (Back to top)

Centers for Medicare & Medicaid Services

A federal agency within the U.S. Department of Health and Human Services that administers the Medicare, Medicaid and State Children’s Health Insurance Programs.

Social Security Administration

Information about benefits, earnings, regulations, retirement and taxes.

National Institute of Neurological Disorders and Stroke

The nation’s leading supporter of biomedical research on disorders of the brain and nervous system.

ADVOCACY AND LEGISLATION (Back to top)

Federal Legislation Tracking

Contact your member of Congress. Daily updates and full text bills available.

The White House Website

RESOURCES FOR PERSONS WITH SPINAL CORD INJURY (Back to top)

Personal Care Attendant

Nearly half of all individuals with spinal cord injuries require personal assistance with certain activities of daily living. The Spinal Cord Information Network provides an overview of how to find a personal care attendant, funding and more.

Hiring and Management of Personal Care Assistants for Invidiuals with Spinal Cord Injury (PDF)

Debra L. Burdsall, MPH, OTR, the community liaison for the Spinal Cord Injury Project at the Santa Clara Valley Medical Center guides readers through understanding the role of and hiring a personal assistant. Checklists, applications, interview tips and more are included.

Northwest Regional Spinal Cord Injury System

A list of resources on personal care attendants provided by the University of Washington.

Craig Hospital

Facing Disability

ACCREDITATION AND STANDARDS (Back to top)

CARF

An internationally-recognized accreditation authority for organizations serving people with disabilities and others in need of rehabilitation.

CMSA

A not-for-profit society of case management and allied health care professionals furthering the development of new, higher levels of industry expertise.

RESOURCES FOR AMPUTEES (Back to top)

Amputee Coalition

The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences.